ATS awareness video

Andrea Tims-Taylor, one of the ATS mums, has put together a brilliant video about ATS and the kids who suffer with it.

The video is below, but if you can't access it then go here- http://bit.ly/1lvGCHO

Thanks to everyone who's donated so far.  Please think about donating, fundraising or sharing this page to help make the kids in the video's lives better.

Thanks!

-Joe

Welcome!

Recently, Arkansas children's hospital has decided that they want to do a study on ATS, which is awesome!  As well as this, the doctors want all of the ATS patients together in America so that they can do tests on us for the study.  All of this is possibly the best thing since the guy who invented sliced bread was born, because now we can try to improve the lives of all the kids (and adults) with ATS and give them a chance to live normal lives.  I'm lucky.  I've never had to have an operation because of my heart condition, and although my life certainly isn't normal, I've got it better than some others like me.  Now, we can help those people.

Of course, this is going to cost money.  We have one foundation interested in funding the ATS study, but that isn't going to be enough.  We need you! *points at you enthusiastically*

That's why we're officially starting ATS fundraising.  We'll be using Paypal for fundraising, and hosting the donation page on a separate blog like this, named Twist Of Fate.  You'll be able to donate with your Paypal account, or with your credit or debit card, quickly and safely on the blog.  The link is below.

We're going to need a lot of funding to make this happen, so if you have any creative fundraising ideas, message me on facebook (Joseph Wills), send a Twitter to me (@Joe_Toe_Wills) or come to my home late and night and scream your requests at my bedroom window (don't do that).  Alternatively, you can email me at wills219@btinternet.com, or my mum at caterina.wills@talk21.com, and we'll arrange something.

Speaking of fundraising, I would like to ANTICLIMACTICALLY ANNOUNCE (ALTHOUGH NOT REALLY BECAUSE I'VE ALREADY TALKED ABOUT IT ON TWITTER) READATHON II: ELECTRIC BOOGALOO!!!

Yeah, I know, it's really exciting, but there's no reason to be hyperventilating.  Here, breathe into this paper bag for a while.

If you weren't around last year, I'll catch you up: around may, I held a readathon, where I pretty much just read as many books as I could for a weekend in the name of Great Ormond Street Hospital.  I consumed around 600 pages in fine reading material, and raised a great amount of money.  With last year's success in mind, I'm doing it again this year for ATS.
Thanks so much to everyone who has expressed an interest in fundraising and donating so far.  Please consider doing so!

Here are the details:

When:
Saturday the 5th and Sunday the 6th of April

Who:
Me, or my doppelganger

Why:
For ATS fundraising

What:
As many books from this year's Carnegie Medal shortlist, which you can view here- http://www.carnegiegreenaway.org.uk/carnegie/current_shortlist.php

How:
Well, I pick up a book and read the words inside.

Thanks so much to everyone who has expressed an interest in fundraising and donating.  We could really use your help.  If you haven't already? Please consider doing so!  Donate now and get a free donkey*!

*The author of this blog post would like to stress that donators will not actually receive a free donkey.  This statement was purely for comedic purposes and should not be taken seriously.  The author rejects any claims that he sincerely said he would be giving away free donkeys, horses, or other mammals and/or birds, and any attempts to sue the author will be taken to court.

Thanks,

-Joe